Medical treatment of women with Lupus. The case for sharing knowledge and decision-making

Citation
K. Whitehead et J. Williams, Medical treatment of women with Lupus. The case for sharing knowledge and decision-making, DISABIL SOC, 16(1), 2001, pp. 103-121
Citations number
33
Language
INGLESE
art.tipo
Article
Categorie Soggetti
Rehabilitation
Journal title
DISABILITY & SOCIETY
ISSN journal
0968-7599 → ACNP
Volume
16
Issue
1
Year of publication
2001
Pages
103 - 121
Database
ISI
SICI code
0968-7599(200101)16:1<103:MTOWWL>2.0.ZU;2-7
Abstract
Few women patients in this study were found to be active partners in the me dical management of systemic lupus erythematosus (SLE). Despite the growing emphasis on doctors and patients sharing knowledge and decision-making pow er, most of the women were struggling to have their symptoms and needs take n seriously, and appeared relatively powerless in relation to the medical p rofession. Acknowledging patient expertise requires that doctors share some of their power, and we suggest this may be especially problematic when med ical resources and power are primarily located in the hands of white men, a nd when the patients are typically women and often from the black community . Implications for action that are considered include maximising the influe nce of women with SLE on research, training and practice.